CARLTON’S BATTLE “TUBEROUS SCLEROSIS”

Carlton
Carlton

My son Carlton passed away May 4,2008 at MUSC in Charleston South Carolina. He was 29 years old and  battled this disease all his life. He was diagnosed at the age of 12 when a brain  tumor was removed. Over the years Carlton lived a very full and happy life. In spite of all the blood work, doctor’s visits, hospital stays, and test. The Battle caused Carlton to have seizures from 11 months old until his passing in May of a stroke.

We’ve been blessed with  lots of help from various doctors, nurses and agencies in the state. My desire is to help families and children with this Battle. Below you will find a list of agencies in South Carolina with a wealth of resources to make your battle a little easier.

Family Connections South Carolina helping children connecting families

http://www.familyconnectionsc.org/programs/partners_in_policymaking_graduate_network/

Pro-Parents-Partners in Policymaking

What is “Partners in Policymaking”?
  • Partners in Policymaking (PIP) is a leadership training program that teaches self-advocates and parents to be community leaders and how to obtain the best available services for themselves and others.

http://www.proparents.org/pip.html

THE BATTLE IS THE LORD’S

Tuberous Sclerosis Fact Sheet

http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm

Complex Support

http://www.tsalliance.org/

List of symptoms of Tuberous sclerosis:

The list of medical symptoms mentioned in various sources for Tuberous sclerosis includes those listed below. Note that Tuberous sclerosis symptoms usually refers to various medical symptoms known to a patient, but the phrase Tuberous sclerosis signs may often refer to those signs that are only noticable by a doctor:

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