CARLTON’S ROOM

THANKS TO YOU, WE’RE ONE GIFT CLOSER TO WHERE OUR STORY MUST END . . . WITH A CURE! Because of you. Your compassion. And the time, energy and resources you have so generously given to the Tuberous Sclerosis Alliance, we have been able to add several promising chapters to the TS Alliance story in 2009. [...]

Welcome To Angels With Special Needs Angels With Special Needs P.O. Box 25555, Columbia, South Carolina 29224, United States Phone: 803-419-5136 Fax: 803-788-3236 Who we are and what we do: We Have Come This Far By Faith “Angels With Special Needs” is a 501 (C)(3) nonprofit organization for children and youth who are severely disabled. The organization provi […]

Jani’s at the mercy of her mind Michael and Susan Schofield’s 6-year-old daughter is locked in a nightmare realm of schizophrenia — and no one can help her. Shari Roan Los Angeles Times Staff Writer It’s been a rough week. A few days ago, at UCLA’s Resnick Neuropsychiatric Hospital, 6-year-old Jani toppled a food cart and [...]

Tuberous Sclerosis What is tuberous sclerosis? Tuberous sclerosis is a disease that causes growths in the skin, brain, kidneys, eyes, heart or lungs. These growths are usually benign (non-cancerous). The first signs of tuberous sclerosis may be seizures and spots on the skin. Some people who have tuberous sclerosis may have learning problems or seizures that […]

National Institute of Neurological Disorders and Stroke LogoNational Institutes of Health http://www.ninds.nih.gov/index.htm Visit the National Institute of Neurological Disorders and Stroke web site to use all the links listed below… Stroke Awareness Visit the Know Stroke Website to learn more about stroke and obtain Know Stroke materials such as broc […]

Selling Sickness: How Drug Ads Changed Health Care by Alix Spiegel October 13, 2009 Listen to the Story Morning Edition [8 min 34 sec] * Add to Playlist * Download * Transcript CorrectionThe audio and a previous Web version of this story mistakenly said that between 1992 and 2008 the average number [...]

17.4 percent in S.C. lack health insurance By DAVID QUICK – The (Charleston) Post and Courier Nearly one in six South Carolinians don’t have health insurance, according to new U.S. Census Bureau data. South Carolina had a 17.4 percent rate statewide. Texas, with a statewide average of 24.1 percent, was at the bottom of the heap. Massachusetts top […]

Why health care reform is crucial for people with disabilities From an op-ed by Ari Ne’eman, founding president of the Autistic Self-Advocacy Network (ASAN), in The Huffington Post. As we speak, Congress is deliberating on vast and important changes to the system of health care in the United States. This issue is [...]

More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This website attempts to aggregate news and commentary about disability, and to document the efforts of people who are seeking new ways to [...]

TS ALLIANCE CONGRESSIONAL ACTION ALERT Dear Friends, TS Alliance Grassroots Advocates Score a Partial Victory! On July 30, the House approved an appropriation of $8 million for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense (DoD). This amount was included in the House-approved version of the Defense Appropriations Act fo […]