Site Directory |
| Lisa’s Tuberous Sclerosis Page |
| TSC Talk WWWeb Site |
| My Family Story |
| Feedback Form |
| Sign/View My Guestbook |
| My Photo Album |
| My Laser Surgery Experience |
| Lisa’s Interests |
| Acronyms used on these pages |
| Questions or comments? Write to: |
| Go To The Top Of The Page |
How did you find my page? Word of Mouth
|
Search Engines |
Alta Vista |
Savvy Search |
Lycos |
Web Crawler |
Yahoo |
| Go To The Top Of The Page |
| Aren’t They Cute Productions |
| Home |
Thank You for stopping by! Be sure to come back soon.. |
Great Information from Lisa’s Tuberous Sclerosis Page
Tuberous Sclerosis and Related Links
Here is my list of sites on Tuberous Sclerosis. This used to be a very small page due to the lack of information about Tuberous Sclerosis available. Things have changed.. I am so happy to see that information about Tuberous Sclerosis is becoming easier to find.
If you have a site that is not listed or if you find that any of these links are not working, please send me E-mail at lkiczuk@title14.com and let me know.Thanks!
Table of Contents
Tuberous Sclerosis Links
My CT Scan
TSC Mailing List
Epilepsy and Neurology Links
Other Related Links
Tuberous Sclerosis Links
The NTSA homepage -The official National Tuberous Sclerosis Association Homepage. Soon to be back up and running!
OMIM Home Page — Online Mendelian Inheritance in Man
Tuberous Sclerosis International -Includes a list of TSI Representatives from around the world.
NCGR -Genetics and Public Issues
Center For Medical Genetics
Center For The Study of Inherited & Neurological Disorders
Tuberous Sclerosis
CPMCnet -Columbia-Presbyterian Medical Center
Ethan’s Tuberous Sclerosis Page -Personal TSC homepage.
Cody & Jordan’s (tuberous sclerosis) Page -Lots of Tuberous Sclerosis info and Links.
Healthtouch-Health Information -there are links on this page to info about TSC.
Tuberous Sclerosis -A short description of TSC.
Report on the 3rd International Chromosome 9 Workshop.
PROFILE A – Z GENETIC CONDITIONS -Reprinted From the AGSA Newsletter with the permission of The Association of Genetic Support of Australia.
Disease: Tuberous Sclerosis – Bourneville’s Disease
Yypeng’s Bookmarks -Wow! Lots of medical links, lots!
Keith Hall’s Tuberous Sclerosis Story
Tuberous Sclerosis -Lots of links!
My CT Scan
My CT scan -This link takes you to a full size image of my CT scan showing the TSC related calcifications.
The TSC Talk Mailing list
To subscribe to the TSC Talk Mailing List..
Just send a message to:
with the command:
subscribe tsctalk
in the body of the message.
Then, after you get on the list send messages directly to tsctalk@title14.com
For help subscribing to the list send email to Lisa
NEW! The TSC Talk WWWeb Site - Drop by and say hello!
For more information on Tuberous Sclerosis contact:
The National Tuberous Sclerosis Association 8181 Professional Place, Suite 110
Landover, MD 20785-2226
1-800-225-6872
E-mail ntsa@aol.com
Or in Canada:
Tuberous Sclerosis Canada Sclerose Tubereuse (TSCST) c/o Jillian DaSilva, President
1-800-347-0252 (available Canada-wide)
jillian.dasilva@ablelink.org
Epilepsy and Neurology Links
Epilepsy Foundation of America
Seizures and Epilepsy-Frequently Asked Questions -by James A. Whitlock, Jr..MD.
Sara’s Epilepsy Page
Tammi’s Homepage -Tammi’s personal experiences with Epilepsy.
Epilepsy Web Page
Surgery for Epilepsy -All about surgery for Epilepsy.
Albert Einstein College of Medicine and Montefiore Medical Center
MGH Neurogenetics Home Page
Organizations Providing Epilepsy Support and Education
Neurology/Neuroscience
Medweb:Neurology -Lots of links to other medical sites, including Epilepsy and Tuberous Sclerosis sites.
Neurology Web Forum -Questions about Epilepsy and other disorders? Post them at the NeuroWebForum.
Epilepsy FAQ -Frequently Asked Questions about Epilepsy.
Department of Neurosurgery -Thomas Jefferson University. Neuro-Implant Program.
The New York Hospital Cornell Medical Center-Comprehensive Epilepsy Center
Epilepsy Surgery at the Medical College of Georgia
Simultaneous EEG and Behavioral Evaluation of Epilepsy in Individuals with Developmental Disabilities.
Comprehensive Epilepsy Center -The Epilepsy Link Page..many links to epilepsy sites!
Epilepsy Hamilton & District
EpiNet -The Epilepsy Foundation of Victoria internet presence
Epilepsy Website -Info and help with epilepsy, resources, contacts.
Le Bureau Francais de l’Epilepsie -A French Epilepsy Page.Seizures and the Ketogenic Diet
Common Questions from Parents Regarding the Ketogenic Diet at LPCHEEG Biofeedback Training for Epilepsy
Remediation of Nocturnal Seizures by EEG Biofeedback
Biofeedback-an introductionEpilepsy Mailing List -In the body of the message put the command subscribe epilepsy-list Firstname Lastname (e.g., “subscribe epilepsy-list Andrew Patrick”)
Usenet group: alt.support. epilepsy -A great bunch of people with one thing in common.. Epilepsy.For more information on Epilepsy contact:
The Epilepsy Foundation of America 4351 Garden City Drive
Landover, MD 20785
1-800-EFA-4050.
E-mail efanel@capcon.net
Other Related Links
Yale Department of Dermatology HomePage -Dermatology Resources.
Wellness Interactive Network -Lots of health info here.
Attention Deficit Disorder WWW Archive
CH.A.D.D. of Bay County, Fl. -Children and Adults with Attention Deficit Disorder.
Usenet group: alt .support.attn-deficit -A support group for people affected by Attention Deficit Disorder.Autism Resources
The Autism and Related Disorders Page
Eric Courchesne Bibliography -Autism info.Resources for Research on Disabilities -Links to information on disabilities.
Family Connection of South Carolina -A support group for the parents of kids with disabilities.
Disability Resources from Evan Kemp Associates -Includes the tip of the month!The Antiepileptic Drug Page -Brought to you by Washington University’s Comprehensive Epilepsy Program
PharmInfoNet -a great source of info on medications.
DrugFAQs: Dilantin (Phenytoin)
Valproic Acid -Depakote,Depakene
Medical Sciences Bulletin -Lamotrogine (Lamictal)
Medical Sciences Bulletin -Gabapentin (Neurontin)
Usenet group: sci.med.pharmacy -Pharmacy and medical discussions.
Usenet group: sci.med -Medical discussions.
AACAP – The American Academy of Child & Adolescent Psychiatry Homepage facts for families.
American Psychological Association -APA Affiliated State and Provincial Psychological Associations (referral services)
You are visitor number since July 31st, 1996.
Back To My Home Page
